Women in England want DIY cervical screening tests on the NHS
The poll was commissioned by Healthwatch England and aims to provide solutions to address hesitancy about cervical screening in a drive to support NHS England’s ambition to eliminate cervical cancer by 2040.
A self-testing kit, which detects human papillomavirus (HPV), a group of viruses that can lead to cervical cancer, helps women carry out cervical screening in the privacy and convenience of their own homes. HPV home kits are currently available to buy at pharmacies at costs of between £29 to £129 but they’re currently not available on the NHS.
Earlier this year, a trial led by Kings College London to offer women who hadn’t taken up screening invitations, a self-testing kit, concluded it could boost the number of women undergoing cervical screening by 400,000 a year.
When asked about the benefits of a self-testing kit, over half of respondents in our research, 53%, chose "privacy", followed by "avoiding discomfort", 52%, and "easier to find time", 47%. The findings also show that women's concerns about the accuracy of any NHS home testing kit would have to be addressed if it was rolled out.
- Three-quarters of women hesitant about cervical screening would use a self-testing kit if it was available free on the NHS.
- A poll of 2,444 women highlights that pain, fear, and misconceptions make them hesitant about taking up invitations for cervical screening appointment.
- Healthwatch England says a more personalised approach to cervical screening will help the NHS meet its ambition to eliminate cervical cancer by 2040.
- It calls for the NHS to adopt self-testing, sensitive handling of appointments by screening professionals, drop-in clinics, and increased awareness, to boost uptake among all women.
Women were also asked to choose out of 11 factors that would encourage them to take up cervical screening in the future. The most important for them were:
- sensitivity from healthcare staff about worries women might have about the examination and previous experiences, 62%;
- a healthcare professional carrying out the screening being the same gender, 61%;
- ease of travelling to the screening appointment location, 53%;
- and a wider choice of appointment times, for instance, in the morning or over weekends, 52%.
Cervical cancer is the 14th most common cancer among women in the UK. Although it’s highly preventable through regular cervical screening, the NHS has not reached a target to screen 80 per cent of eligible women, over the past 20 years. Screening ptake has been decreasing, with nearly a third of eligible women in England not coming forward for screening in 2023.
Around four in 10, 39%, of the respondents had never attended cervical screening previously and had greater concerns about some aspects of screening than those who had attended it before.
Half of women who’d chosen not to take up an NHS invitation for screening, said they were worried about physical discomfort, compared to 32% of women who’d taken up a screening invitation.
Women who hadn’t attended screening were also more worried about embarrassment, the potential result, or believed they didn't need it, compared to women who had taken up screening previously.
Over one in five, 21%, of women said they didn't feel the need to attend their appointment as they were not sexually active, while 15% said they had a past traumatic experience unrelated to screening.
Findings for all respondents also showed young women aged 24-29 were more worried about feeling physical discomfort, compared with women aged 60-64. This was also a greater concern for disabled women, 43%, than for non-disabled women, 36%.
Women of Asian heritage were more likely, 30%, than White, 26%, or Black, 20%, women to say one reason for their hesitancy was embarrassment at having to undress in front a healthcare professional.
Louise Ansari, Chief Executive of Healthwatch England said:
"Women's diverse voices and experiences must drive improvements to cervical screening and NHS England's ambition to eliminate cervical cancer by 2040.
"The strong support for free HPV home-testing represents a major opportunity to increase uptake of screening - we urge NHS England to adopt home-testing as an alternative screening solution.
“Until a decision is made on home testing, it’s clear that there should be no one- size-fits-all approach to the delivery of cervical screening. A personalised approach is vital for such an intimate procedure that for many women causes embarrassment or discomfort at best and fear and shame in the worst cases.
“The number one priority for most women was having empathetic and sensitive staff deliver the screening. This includes nurses or doctors who take time to answer questions beforehand, offer practical changes during the exam to reduce pain or discomfort, sensitively handle any past traumatic abuse that makes them fearful of intimate procedures, and who make adjustments for disabled women or people with extra communication needs.
“Women also told us they want more flexible appointment times or drop-in clinics to fit around busy lives involving work or caring responsibilities and we urge screening providers to work with their local Healthwatch to understand their community's needs."
Jennifer’s story: I delayed booking my appointment by a year
Jennifer, 28, has only recently attended her scheduled cervical screening after delaying it by a year: “Although I got a reminder letter, I delayed booking my appointment by a year, as I found the last one I went to, around four years ago, really stressful.”
She thinks healthcare professionals who perform the screening need more training to understand women's discomfort and go at their pace during the appointment:
"What we need is more awareness and more understanding of women's hesitations and their medical history which can impact how they react to cervical screening.”“I think for some women a self-test kit would be the only way they would consider having their smear test. For myself, I would still choose to go to a health professional who is trained to do this. I recently went for my overdue smear and after explaining my vaginismus to the nurse, she was great, really supportive and let me take control of the appointment. Crucially she didn't rush me and wasn't dismissive of my pain.”
Our recommendations
Our report "Cervical screening my way" also sets out recommendations for healthcare leaders, calling for:
- Solutions to ensure that disability and ethnicity data about people attending screening can be captured, analysed, and published alongside regional and age uptake data in the future.
- High-profile promotion of trusted sources of direct support and information for women.
- Training for admin and screening staff to meet their responsibilities regarding accessible information and adjustments to care.
- More flexible booking methods, appointment times and preferred locations for drop-in clinics.
- Introduction of an NHS-branded Trauma Card, based on a Healthwatch Essex initiative for affected women to bring to appointments.
- Adoption of self-screening as an alternative option offered to all women nationally who would prefer it, subject to the results of NHS-commissioned research on the safety and effectiveness of self-screening.
To learn more, read our report, which unpacks women's experiences with cervical screening and sets our recommendations for healthcare leaders.
